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Involving older people in the design and conduct of clinical trials: what is patient and public involvement? 

Involving older people in the design and conduct of clinical trials: what is patient and public involvement?
Chapter:
Involving older people in the design and conduct of clinical trials: what is patient and public involvement?
Author(s):

Kate Wilde

and Zena Jones

DOI:
10.1093/med/9780199689644.003.0015
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date: 23 October 2019

Key points

There are strong policy drivers in the UK to involve patients not only as participants in research, but also as members of the research team.

Patient and public involvement (PPI) can have significant benefits to the patient as well as to the research project.

Many research funders require PPI explicitly described and evaluated in research proposals.

Researchers need increased awareness of PPI, guidance, and a framework of how best to implement PPI within their research strategies.

There is a risk of ‘tokenistic’ involvement of service users.

There is the potential for a power struggle between the PPI representative with personal experience and the lead researcher with academic knowledge of the condition studied.

There is a need to formally evaluate the impact of PPI on the effectiveness of research to bring new treatments to patients.

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