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Care of children with advanced illness 

Care of children with advanced illness
Care of children with advanced illness

John J. Collins

, Kirsty Campbell

, Wendy Edmonds

, Judith Frost

, Martha F. Mherekumombe

, and Natasha Samy

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date: 24 January 2022

The World Health Organization supports the global application of the principles of palliative care to every child with a life-limiting illness, irrespective of geographical location whilst acknowledging that treatment options are limited in some countries. The care of the child with advanced and progressive illness and their family requires a holistic approach to the often complex physical, social, psychological, and spiritual needs as well as support in bereavement. This inevitably requires a paediatric palliative care team with diverse skills and abilities to meet these needs. This chapter discusses the global perspective of paediatric palliative care and the role of the team, nursing, and volunteers in that care. The significant physical and psychosocial issues for the child with advanced illness are discussed, as well as bereavement support of families. The necessity of quality improvement and strategies for setting up such a programme are outlined.

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