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A new way of considering ‘quality of life’ 

A new way of considering ‘quality of life’
Chapter:
A new way of considering ‘quality of life’
Author(s):

Allison Worth

DOI:
10.1093/med/9780199651559.003.0060
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date: 18 November 2019

Instruments to measure symptoms of rhinoconjunctivitis are used commonly in clinical trials in rhinoconjunctivitis. However, these questionnaires do not address the overall impact of the symptoms on patients’ day-to-day lives. In response to the need for a more sophisticated instrument for measuring health-related quality of life in clinical trials in rhinoconjunctivitis we developed Quality of Life Questionnaire (RQLQ) . . . In this paper we describe the developmental process for the RQLQ and present data regarding the reproducibility, responsiveness and validity of the questionnaire . . . The aim was to develop an evaluative instrument capable of measuring change over time within people . . . . . . although the issues of greatest concern to patients with rhinoconjunctivitis are the symptoms which are traditionally measured, in almost all patients the condition has a deleterious impact on a number of aspects of their lives. Almost all patients experience important degrees of systemic symptoms, impairment of sleep, limitation of activities, and emotional distress as a result of their rhinoconjunctivitis. Any attempt to measure the full impact of the condition, or its treatment, must consider these other factors.

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