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Psychological well-being 

Psychological well-being
Psychological well-being

David Hilton-Jones

, Jane Freebody

, and Jane Stein

Page of

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date: 30 October 2020

Coping with progressive disability and changes to lifestyle 134

Grief reactions 136

Sharing information with close family/friends 138

Advance planning 138

Prebereavement planning/terminal care 140

Terminal care 142

Awareness of differing cultural/religious beliefs 142

Many neuromuscular conditions are progressive and the patient (and those close to them) has to cope with increasing physical disability and an ever changing set of circumstances. This can be frightening. The individual is travelling down a path that is unfamiliar to them and will require sensitive support from professionals, friends, and family. The goal posts are ever shifting—as the individual learns to cope with one level of disability, the disease continues to progress presenting new challenges....

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