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Medical management 

Medical management
Medical management

David Hilton-Jones

, Jane Freebody

, and Jane Stein

Page of

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date: 16 January 2021

Introduction 40

Disease-specific protocols 42

Respiratory monitoring 44

Cardiac monitoring 48

Genetic issues 50

Speech and swallowing problems 58

Orthopaedic and related issues 60

Pain management 62

Pregnancy 64

Medications 66

Research 68

Appendix 1: Cardiff Myotonic Dystrophy Muscle Clinic Record70

Appendix 2: Myotonic Dystrophy Care Card...

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