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Conducting Qualitative Genetic Counseling Research 

Conducting Qualitative Genetic Counseling Research
Chapter:
Conducting Qualitative Genetic Counseling Research
Author(s):

Ian M. MacFarlane

, Patricia McCarthy Veach

, and Bonnie S. LeRoy

DOI:
10.1093/med/9780199359097.003.0008
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date: 20 February 2020

This chapter outlines tips and strategies for conducting a rigorous qualitative study. Focusing primarily on individual interviews and focus group interviews, the chapter walks the reader through recruiting participants (sampling), creating an interview protocol, analyzing data, and writing up the results. Common qualitative terms such as memoing, thick descriptions, saturation, and bracketing bias are introduced to help researchers appropriately discuss their design, data analysis methods, and results. Case studies and archival studies are also briefly discussed, as these methods are also used by genetic counseling researchers. A worksheet for developing an interview protocol concludes the chapter.

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