- Chapter 1 Setting the Genomic Stage: Why Genomics, Why Narratives, Why Now?
Through the use of dramatic narratives, The Drama of DNA brings to life the complexities raised by the application of genomic technologies to health care and diagnosis. This creative, pedagogical approach shines a unique light on the ethical, psychosocial, and policy challenges that emerge as comprehensive sequencing of the human genome transitions from research to clinical medicine. Narrative genomics aims to enhance understanding of how we evaluate, process, and share genomic information, and to cultivate a deeper appreciation for difficult decisions encountered by health care professionals, bioethicists, families, and society as this technology reaches the bedside. This innovative title includes both original genomic plays and theatrical excerpts that illuminate the implications of genomic information and emerging technologies for physicians, scientists, counselors, patients, blood relatives, and society. In addition to the plays, the authors provide an analytical foundation to frame the many challenges that often arise.
Karen H. Rothenberg, author Senior Advisor on Genomics and Society, National Human Genome Research Institute, Bethesda, Maryland, USA
Lynn Wein Bush, author Faculty of Pediatric Clinical Genetics, Columbia University Medical Center, New York, USA
date: 08 May 2021