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Patient’s perspective 

Patient’s perspective
Chapter:
Patient’s perspective
DOI:
10.1093/med/9780198831426.003.0022
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date: 09 May 2021

This chapter is written by a patient with a long-term musculoskeletal condition but who also happens to be the chief executive of a patient organization. The patient’s perspective on their disease, their experience of the healthcare journey, and their ability to access to key information are important components that healthcare professionals need to be mindful of. This chapter describes the needs of the patient in practical terms, and offers tips to guide the patient during their outpatient appointments. The nurse specialist role is highlighted as one that is highly valued and the cornerstone for many patients with a long-term condition. The challenges patients face are described, along with advice to services on how to build care that is receptive to patients’ comments but importantly also offers opportunities that can empower the patient . Equally, this chapter offers some great links and information on some excellent resources for nurses and patients to access.

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