- Contributors
- Chapter 1 What is advocacy?
- Chapter 2 Taking an epistemological perspective on advocacy
- Chapter 3 Advocacy in history and culture
- Chapter 4 Ethical issues in neurology
- Chapter 5 Physician autonomy and the pharmaceutical industry
- Chapter 6 Advocacy, campaigning, lobbying: Good or bad?
- Chapter 7 Knowledge and science are not enough
- Chapter 8 Perspectives on advocacy of medical doctors
- Chapter 9 Advocacy and the perspective of (neurology) nursing
- Chapter 10 Patient and caregiver advocacy
- Chapter 11 Patient involvement in European cancer societies: The example of ECCO—the European CanCer Organization
- Chapter 12 Advocacy for neurology in migrants
- Chapter 13 Advocacy for neurology: Local, regional, and national
- Chapter 14 Advocacy in the international arena
- Chapter 15 Working with others, the lesson of the European Brain Council
- Chapter 16 SOS Children’s Villages: Rediscovering advocacy to increase relevance and impact. A high-level case study
- Chapter 17 Project management techniques for advocates
- Chapter 18 International advocacy: Case studies and lessons learnt
- Chapter 19 Using PR tools for advocacy
- Chapter 20 Advocacy for stroke
- Chapter 21 Two decades of patient advocacy in multiple sclerosis: The success story of the European Multiple Sclerosis Platform
- Chapter 22 Advocacy in amyotrophic lateral sclerosis
- Chapter 23 Neuromuscular disorders and advocacy
- Chapter 24 Advocacy for movement disorders
- Chapter 25 Advocacy for brain tumours
- Chapter 26 Advocacy in dementia
- Chapter 27 Advocating for orphan diseases in neurology
- Chapter 28 Palliative care
- Chapter 29 Advocacy for epilepsy: From the shadows to centre stage: Stand up for epilepsy
- Chapter 30 Advocacy for patients with headache
- Chapter 31 Advocacy for patients with neuropathic pain
- Chapter 32 Continuation or ending and ‘debriefing’
- Chapter 33 Results, outlook, and goals of this book
- Index
(p. 89) Advocacy and the perspective of (neurology) nursing
- Chapter:
- (p. 89) Advocacy and the perspective of (neurology) nursing
- Author(s):
Hanneke Zwinkels
- DOI:
- 10.1093/med/9780198796039.003.0009
The advocacy role of neurology nurses—similar as to other involved healthcare professionals—is to support the patient and the caregiver through active involvement in analysing needs during the disease process and thereby improve a present condition of state. Advocacy is an activity to act in the best interest of the patient, in accordance with their wishes. In caretaking for patients’ well-being, the neurology nurse has to keep patients properly informed and carry out treatment and care plans with competence and diligence, while maintaining patients’ confidentiality. Neurology nurses in this way can contribute their expertise and influence as they work with communities or patient populations to improve health. With a case study of a neuro-oncology patient, it is made clear how neurology nurses will be able to determine and understand needs, speak on behalf of others when required, and support the mobilization of resources to effect change, and in this way, improve quality of care. Within multidisciplinary care the neurology nurse can have the role of a patient’s care navigator. When acknowledged as a case manager, the neurology nurse is able to deploy advocacy for the patients she takes care of.
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- Contributors
- Chapter 1 What is advocacy?
- Chapter 2 Taking an epistemological perspective on advocacy
- Chapter 3 Advocacy in history and culture
- Chapter 4 Ethical issues in neurology
- Chapter 5 Physician autonomy and the pharmaceutical industry
- Chapter 6 Advocacy, campaigning, lobbying: Good or bad?
- Chapter 7 Knowledge and science are not enough
- Chapter 8 Perspectives on advocacy of medical doctors
- Chapter 9 Advocacy and the perspective of (neurology) nursing
- Chapter 10 Patient and caregiver advocacy
- Chapter 11 Patient involvement in European cancer societies: The example of ECCO—the European CanCer Organization
- Chapter 12 Advocacy for neurology in migrants
- Chapter 13 Advocacy for neurology: Local, regional, and national
- Chapter 14 Advocacy in the international arena
- Chapter 15 Working with others, the lesson of the European Brain Council
- Chapter 16 SOS Children’s Villages: Rediscovering advocacy to increase relevance and impact. A high-level case study
- Chapter 17 Project management techniques for advocates
- Chapter 18 International advocacy: Case studies and lessons learnt
- Chapter 19 Using PR tools for advocacy
- Chapter 20 Advocacy for stroke
- Chapter 21 Two decades of patient advocacy in multiple sclerosis: The success story of the European Multiple Sclerosis Platform
- Chapter 22 Advocacy in amyotrophic lateral sclerosis
- Chapter 23 Neuromuscular disorders and advocacy
- Chapter 24 Advocacy for movement disorders
- Chapter 25 Advocacy for brain tumours
- Chapter 26 Advocacy in dementia
- Chapter 27 Advocating for orphan diseases in neurology
- Chapter 28 Palliative care
- Chapter 29 Advocacy for epilepsy: From the shadows to centre stage: Stand up for epilepsy
- Chapter 30 Advocacy for patients with headache
- Chapter 31 Advocacy for patients with neuropathic pain
- Chapter 32 Continuation or ending and ‘debriefing’
- Chapter 33 Results, outlook, and goals of this book
- Index