- Contributors
- Chapter 1 What is advocacy?
- Chapter 2 Taking an epistemological perspective on advocacy
- Chapter 3 Advocacy in history and culture
- Chapter 4 Ethical issues in neurology
- Chapter 5 Physician autonomy and the pharmaceutical industry
- Chapter 6 Advocacy, campaigning, lobbying: Good or bad?
- Chapter 7 Knowledge and science are not enough
- Chapter 8 Perspectives on advocacy of medical doctors
- Chapter 9 Advocacy and the perspective of (neurology) nursing
- Chapter 10 Patient and caregiver advocacy
- Chapter 11 Patient involvement in European cancer societies: The example of ECCO—the European CanCer Organization
- Chapter 12 Advocacy for neurology in migrants
- Chapter 13 Advocacy for neurology: Local, regional, and national
- Chapter 14 Advocacy in the international arena
- Chapter 15 Working with others, the lesson of the European Brain Council
- Chapter 16 SOS Children’s Villages: Rediscovering advocacy to increase relevance and impact. A high-level case study
- Chapter 17 Project management techniques for advocates
- Chapter 18 International advocacy: Case studies and lessons learnt
- Chapter 19 Using PR tools for advocacy
- Chapter 20 Advocacy for stroke
- Chapter 21 Two decades of patient advocacy in multiple sclerosis: The success story of the European Multiple Sclerosis Platform
- Chapter 22 Advocacy in amyotrophic lateral sclerosis
- Chapter 23 Neuromuscular disorders and advocacy
- Chapter 24 Advocacy for movement disorders
- Chapter 25 Advocacy for brain tumours
- Chapter 26 Advocacy in dementia
- Chapter 27 Advocating for orphan diseases in neurology
- Chapter 28 Palliative care
- Chapter 29 Advocacy for epilepsy: From the shadows to centre stage: Stand up for epilepsy
- Chapter 30 Advocacy for patients with headache
- Chapter 31 Advocacy for patients with neuropathic pain
- Chapter 32 Continuation or ending and ‘debriefing’
- Chapter 33 Results, outlook, and goals of this book
- Index
(p. 41) Ethical issues in neurology
- Chapter:
- (p. 41) Ethical issues in neurology
- Author(s):
Jan J. Heimans
- DOI:
- 10.1093/med/9780198796039.003.0004
Neurologic diseases may lead to brain dysfunction and consequently to impairment of consciousness, cognitive decline, and emotional disturbances. These conditions may give rise to a wide array of ethical issues. Cerebral dysfunction can be temporary but many conditions are chronic and/or progressive, and the impact of such long-lasting brain dysfunction on decision-making processes is substantial. In this chapter, disturbances of consciousness and the decision-making process, with focus on communication during the various stages of coma, persistent vegetative state, and permanent vegetative state, are discussed. Special attention is paid to the role of proxies, who often have to act as surrogate decision-makers. Further, some aspects of brain death and organ donation are reviewed and the role of the neurologist as a specialist with respect to brain functioning, but also as an advocate acting in the interest of the patient and the patients’ relatives is depicted. Subsequently, consequences of impaired decision-making capacity in dementia and other diseases leading to diminished cognitive functioning are discussed and a short reflection is dedicated to driving ability. Ultimately, ethical issues in connection with decisions on withdrawing and withholding life-sustaining treatment including end-of-life decisions are discussed, both in neurologic diseases with diminished cognitive functioning but also in neurologic disorders, like motor neuron disease, where cognitive functions are preserved.
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- Contributors
- Chapter 1 What is advocacy?
- Chapter 2 Taking an epistemological perspective on advocacy
- Chapter 3 Advocacy in history and culture
- Chapter 4 Ethical issues in neurology
- Chapter 5 Physician autonomy and the pharmaceutical industry
- Chapter 6 Advocacy, campaigning, lobbying: Good or bad?
- Chapter 7 Knowledge and science are not enough
- Chapter 8 Perspectives on advocacy of medical doctors
- Chapter 9 Advocacy and the perspective of (neurology) nursing
- Chapter 10 Patient and caregiver advocacy
- Chapter 11 Patient involvement in European cancer societies: The example of ECCO—the European CanCer Organization
- Chapter 12 Advocacy for neurology in migrants
- Chapter 13 Advocacy for neurology: Local, regional, and national
- Chapter 14 Advocacy in the international arena
- Chapter 15 Working with others, the lesson of the European Brain Council
- Chapter 16 SOS Children’s Villages: Rediscovering advocacy to increase relevance and impact. A high-level case study
- Chapter 17 Project management techniques for advocates
- Chapter 18 International advocacy: Case studies and lessons learnt
- Chapter 19 Using PR tools for advocacy
- Chapter 20 Advocacy for stroke
- Chapter 21 Two decades of patient advocacy in multiple sclerosis: The success story of the European Multiple Sclerosis Platform
- Chapter 22 Advocacy in amyotrophic lateral sclerosis
- Chapter 23 Neuromuscular disorders and advocacy
- Chapter 24 Advocacy for movement disorders
- Chapter 25 Advocacy for brain tumours
- Chapter 26 Advocacy in dementia
- Chapter 27 Advocating for orphan diseases in neurology
- Chapter 28 Palliative care
- Chapter 29 Advocacy for epilepsy: From the shadows to centre stage: Stand up for epilepsy
- Chapter 30 Advocacy for patients with headache
- Chapter 31 Advocacy for patients with neuropathic pain
- Chapter 32 Continuation or ending and ‘debriefing’
- Chapter 33 Results, outlook, and goals of this book
- Index