- Contributors
- Chapter 1 What is advocacy?
- Chapter 2 Taking an epistemological perspective on advocacy
- Chapter 3 Advocacy in history and culture
- Chapter 4 Ethical issues in neurology
- Chapter 5 Physician autonomy and the pharmaceutical industry
- Chapter 6 Advocacy, campaigning, lobbying: Good or bad?
- Chapter 7 Knowledge and science are not enough
- Chapter 8 Perspectives on advocacy of medical doctors
- Chapter 9 Advocacy and the perspective of (neurology) nursing
- Chapter 10 Patient and caregiver advocacy
- Chapter 11 Patient involvement in European cancer societies: The example of ECCO—the European CanCer Organization
- Chapter 12 Advocacy for neurology in migrants
- Chapter 13 Advocacy for neurology: Local, regional, and national
- Chapter 14 Advocacy in the international arena
- Chapter 15 Working with others, the lesson of the European Brain Council
- Chapter 16 SOS Children’s Villages: Rediscovering advocacy to increase relevance and impact. A high-level case study
- Chapter 17 Project management techniques for advocates
- Chapter 18 International advocacy: Case studies and lessons learnt
- Chapter 19 Using PR tools for advocacy
- Chapter 20 Advocacy for stroke
- Chapter 21 Two decades of patient advocacy in multiple sclerosis: The success story of the European Multiple Sclerosis Platform
- Chapter 22 Advocacy in amyotrophic lateral sclerosis
- Chapter 23 Neuromuscular disorders and advocacy
- Chapter 24 Advocacy for movement disorders
- Chapter 25 Advocacy for brain tumours
- Chapter 26 Advocacy in dementia
- Chapter 27 Advocating for orphan diseases in neurology
- Chapter 28 Palliative care
- Chapter 29 Advocacy for epilepsy: From the shadows to centre stage: Stand up for epilepsy
- Chapter 30 Advocacy for patients with headache
- Chapter 31 Advocacy for patients with neuropathic pain
- Chapter 32 Continuation or ending and ‘debriefing’
- Chapter 33 Results, outlook, and goals of this book
- Index
(p. 339) Advocacy for patients with headache
- Chapter:
- (p. 339) Advocacy for patients with headache
- Author(s):
Timothy J. Steiner
, and Jes Olesen
- DOI:
- 10.1093/med/9780198796039.003.0029
Despite irrefutable evidence of the high prevalence, burden, and cost of headache disorders, advocacy for headache—for more headache research and better headache care—has been largely in vain so far. Headache receives little respect and few resources. There are scientific, public health, and financial arguments for change, which are evidence-based and sound. They make compelling messages, which nonetheless have not yet reached the consciousness of health policymakers. Headache disorders are the least funded of all neurological disorders, while accounting for more disability than all other neurological disorders combined. This is a remediable failure. The worldwide programme of activities of the Global Campaign against Headache, and its collaboration with the Global Burden of Disease studies, are generating an unstoppable flow of evidence to support change. The World Health Organization has acknowledged the global public health importance of headache, and committed to advocacy on its behalf at macro level. A momentum is building. The arguments for change are, for now, unanswerable, but they have to be put to those who can make change happen, and repeated again and again. If they work with these organizations, the many national and supranational professional and lay groups will find previously closed doors are, at last, slowly opening.
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- Contributors
- Chapter 1 What is advocacy?
- Chapter 2 Taking an epistemological perspective on advocacy
- Chapter 3 Advocacy in history and culture
- Chapter 4 Ethical issues in neurology
- Chapter 5 Physician autonomy and the pharmaceutical industry
- Chapter 6 Advocacy, campaigning, lobbying: Good or bad?
- Chapter 7 Knowledge and science are not enough
- Chapter 8 Perspectives on advocacy of medical doctors
- Chapter 9 Advocacy and the perspective of (neurology) nursing
- Chapter 10 Patient and caregiver advocacy
- Chapter 11 Patient involvement in European cancer societies: The example of ECCO—the European CanCer Organization
- Chapter 12 Advocacy for neurology in migrants
- Chapter 13 Advocacy for neurology: Local, regional, and national
- Chapter 14 Advocacy in the international arena
- Chapter 15 Working with others, the lesson of the European Brain Council
- Chapter 16 SOS Children’s Villages: Rediscovering advocacy to increase relevance and impact. A high-level case study
- Chapter 17 Project management techniques for advocates
- Chapter 18 International advocacy: Case studies and lessons learnt
- Chapter 19 Using PR tools for advocacy
- Chapter 20 Advocacy for stroke
- Chapter 21 Two decades of patient advocacy in multiple sclerosis: The success story of the European Multiple Sclerosis Platform
- Chapter 22 Advocacy in amyotrophic lateral sclerosis
- Chapter 23 Neuromuscular disorders and advocacy
- Chapter 24 Advocacy for movement disorders
- Chapter 25 Advocacy for brain tumours
- Chapter 26 Advocacy in dementia
- Chapter 27 Advocating for orphan diseases in neurology
- Chapter 28 Palliative care
- Chapter 29 Advocacy for epilepsy: From the shadows to centre stage: Stand up for epilepsy
- Chapter 30 Advocacy for patients with headache
- Chapter 31 Advocacy for patients with neuropathic pain
- Chapter 32 Continuation or ending and ‘debriefing’
- Chapter 33 Results, outlook, and goals of this book
- Index