- Contributors
- Chapter 1 What is advocacy?
- Chapter 2 Taking an epistemological perspective on advocacy
- Chapter 3 Advocacy in history and culture
- Chapter 4 Ethical issues in neurology
- Chapter 5 Physician autonomy and the pharmaceutical industry
- Chapter 6 Advocacy, campaigning, lobbying: Good or bad?
- Chapter 7 Knowledge and science are not enough
- Chapter 8 Perspectives on advocacy of medical doctors
- Chapter 9 Advocacy and the perspective of (neurology) nursing
- Chapter 10 Patient and caregiver advocacy
- Chapter 11 Patient involvement in European cancer societies: The example of ECCO—the European CanCer Organization
- Chapter 12 Advocacy for neurology in migrants
- Chapter 13 Advocacy for neurology: Local, regional, and national
- Chapter 14 Advocacy in the international arena
- Chapter 15 Working with others, the lesson of the European Brain Council
- Chapter 16 SOS Children’s Villages: Rediscovering advocacy to increase relevance and impact. A high-level case study
- Chapter 17 Project management techniques for advocates
- Chapter 18 International advocacy: Case studies and lessons learnt
- Chapter 19 Using PR tools for advocacy
- Chapter 20 Advocacy for stroke
- Chapter 21 Two decades of patient advocacy in multiple sclerosis: The success story of the European Multiple Sclerosis Platform
- Chapter 22 Advocacy in amyotrophic lateral sclerosis
- Chapter 23 Neuromuscular disorders and advocacy
- Chapter 24 Advocacy for movement disorders
- Chapter 25 Advocacy for brain tumours
- Chapter 26 Advocacy in dementia
- Chapter 27 Advocating for orphan diseases in neurology
- Chapter 28 Palliative care
- Chapter 29 Advocacy for epilepsy: From the shadows to centre stage: Stand up for epilepsy
- Chapter 30 Advocacy for patients with headache
- Chapter 31 Advocacy for patients with neuropathic pain
- Chapter 32 Continuation or ending and ‘debriefing’
- Chapter 33 Results, outlook, and goals of this book
- Index
(p. 315) Palliative care
- Chapter:
- (p. 315) Palliative care
- Author(s):
David Oliver
- DOI:
- 10.1093/med/9780198796039.003.0027
Palliative care aims to provide holistic care for the person and their family, considering physical, psychosocial, and spiritual aspects of care. Advocacy is at the core of the care provided, in enabling people to be enabled to make decisions and be fully involved in their care. However, neurological disease may cause both communication and cognitive difficulties and care may need to be discussed and planned in advance, so that the person’s views are clear. As this chapter explores, the discussions are a challenge for all involved but are essential to enable the person and their family to be fully involved in their care.
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- Contributors
- Chapter 1 What is advocacy?
- Chapter 2 Taking an epistemological perspective on advocacy
- Chapter 3 Advocacy in history and culture
- Chapter 4 Ethical issues in neurology
- Chapter 5 Physician autonomy and the pharmaceutical industry
- Chapter 6 Advocacy, campaigning, lobbying: Good or bad?
- Chapter 7 Knowledge and science are not enough
- Chapter 8 Perspectives on advocacy of medical doctors
- Chapter 9 Advocacy and the perspective of (neurology) nursing
- Chapter 10 Patient and caregiver advocacy
- Chapter 11 Patient involvement in European cancer societies: The example of ECCO—the European CanCer Organization
- Chapter 12 Advocacy for neurology in migrants
- Chapter 13 Advocacy for neurology: Local, regional, and national
- Chapter 14 Advocacy in the international arena
- Chapter 15 Working with others, the lesson of the European Brain Council
- Chapter 16 SOS Children’s Villages: Rediscovering advocacy to increase relevance and impact. A high-level case study
- Chapter 17 Project management techniques for advocates
- Chapter 18 International advocacy: Case studies and lessons learnt
- Chapter 19 Using PR tools for advocacy
- Chapter 20 Advocacy for stroke
- Chapter 21 Two decades of patient advocacy in multiple sclerosis: The success story of the European Multiple Sclerosis Platform
- Chapter 22 Advocacy in amyotrophic lateral sclerosis
- Chapter 23 Neuromuscular disorders and advocacy
- Chapter 24 Advocacy for movement disorders
- Chapter 25 Advocacy for brain tumours
- Chapter 26 Advocacy in dementia
- Chapter 27 Advocating for orphan diseases in neurology
- Chapter 28 Palliative care
- Chapter 29 Advocacy for epilepsy: From the shadows to centre stage: Stand up for epilepsy
- Chapter 30 Advocacy for patients with headache
- Chapter 31 Advocacy for patients with neuropathic pain
- Chapter 32 Continuation or ending and ‘debriefing’
- Chapter 33 Results, outlook, and goals of this book
- Index