- Contributors
- Chapter 1 What is advocacy?
- Chapter 2 Taking an epistemological perspective on advocacy
- Chapter 3 Advocacy in history and culture
- Chapter 4 Ethical issues in neurology
- Chapter 5 Physician autonomy and the pharmaceutical industry
- Chapter 6 Advocacy, campaigning, lobbying: Good or bad?
- Chapter 7 Knowledge and science are not enough
- Chapter 8 Perspectives on advocacy of medical doctors
- Chapter 9 Advocacy and the perspective of (neurology) nursing
- Chapter 10 Patient and caregiver advocacy
- Chapter 11 Patient involvement in European cancer societies: The example of ECCO—the European CanCer Organization
- Chapter 12 Advocacy for neurology in migrants
- Chapter 13 Advocacy for neurology: Local, regional, and national
- Chapter 14 Advocacy in the international arena
- Chapter 15 Working with others, the lesson of the European Brain Council
- Chapter 16 SOS Children’s Villages: Rediscovering advocacy to increase relevance and impact. A high-level case study
- Chapter 17 Project management techniques for advocates
- Chapter 18 International advocacy: Case studies and lessons learnt
- Chapter 19 Using PR tools for advocacy
- Chapter 20 Advocacy for stroke
- Chapter 21 Two decades of patient advocacy in multiple sclerosis: The success story of the European Multiple Sclerosis Platform
- Chapter 22 Advocacy in amyotrophic lateral sclerosis
- Chapter 23 Neuromuscular disorders and advocacy
- Chapter 24 Advocacy for movement disorders
- Chapter 25 Advocacy for brain tumours
- Chapter 26 Advocacy in dementia
- Chapter 27 Advocating for orphan diseases in neurology
- Chapter 28 Palliative care
- Chapter 29 Advocacy for epilepsy: From the shadows to centre stage: Stand up for epilepsy
- Chapter 30 Advocacy for patients with headache
- Chapter 31 Advocacy for patients with neuropathic pain
- Chapter 32 Continuation or ending and ‘debriefing’
- Chapter 33 Results, outlook, and goals of this book
- Index
(p. 3) What is advocacy?
- Chapter:
- (p. 3) What is advocacy?
- Author(s):
Wolfgang Grisold
, Walter Struhal
, and Thomas Grisold
- DOI:
- 10.1093/med/9780198796039.003.0001
Neurology is concerned with diseases of the brain, spinal cord, and neuromuscular system. Neurological diseases can be acute or chronic, and residual or progressive disease often leaves patients with handicaps and disability. Besides many frequent neurological diseases as stroke, epilepsy, movement disorders and others, neurology also includes rare and orphan diseases. In addition to science, treatment, and care, patients and carers often need support at various levels and for distinct problems ranging from individual to global issues, which will be defined as the micro-, meso-, and macro levels. Advocacy, originally defined as ‘giving a voice’ to patients and creating awareness, becomes an essential component of neurological practice. The term advocacy is used in medical, social, and several other contexts. Advocacy usually requires an advocate, client, or object, and usually another party or position is present. In the medical context, advocacy is often fuelled by altruistic elements. Advocacy in neurology can be achieved by different methods and at different levels. This chapter provides an introduction to the edited volume on ‘Advocacy in Neurology’ and gives an outlook on what the reader can gain from this book by summarizing recurrent themes and highlighting different approaches in individual chapters.
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- Contributors
- Chapter 1 What is advocacy?
- Chapter 2 Taking an epistemological perspective on advocacy
- Chapter 3 Advocacy in history and culture
- Chapter 4 Ethical issues in neurology
- Chapter 5 Physician autonomy and the pharmaceutical industry
- Chapter 6 Advocacy, campaigning, lobbying: Good or bad?
- Chapter 7 Knowledge and science are not enough
- Chapter 8 Perspectives on advocacy of medical doctors
- Chapter 9 Advocacy and the perspective of (neurology) nursing
- Chapter 10 Patient and caregiver advocacy
- Chapter 11 Patient involvement in European cancer societies: The example of ECCO—the European CanCer Organization
- Chapter 12 Advocacy for neurology in migrants
- Chapter 13 Advocacy for neurology: Local, regional, and national
- Chapter 14 Advocacy in the international arena
- Chapter 15 Working with others, the lesson of the European Brain Council
- Chapter 16 SOS Children’s Villages: Rediscovering advocacy to increase relevance and impact. A high-level case study
- Chapter 17 Project management techniques for advocates
- Chapter 18 International advocacy: Case studies and lessons learnt
- Chapter 19 Using PR tools for advocacy
- Chapter 20 Advocacy for stroke
- Chapter 21 Two decades of patient advocacy in multiple sclerosis: The success story of the European Multiple Sclerosis Platform
- Chapter 22 Advocacy in amyotrophic lateral sclerosis
- Chapter 23 Neuromuscular disorders and advocacy
- Chapter 24 Advocacy for movement disorders
- Chapter 25 Advocacy for brain tumours
- Chapter 26 Advocacy in dementia
- Chapter 27 Advocating for orphan diseases in neurology
- Chapter 28 Palliative care
- Chapter 29 Advocacy for epilepsy: From the shadows to centre stage: Stand up for epilepsy
- Chapter 30 Advocacy for patients with headache
- Chapter 31 Advocacy for patients with neuropathic pain
- Chapter 32 Continuation or ending and ‘debriefing’
- Chapter 33 Results, outlook, and goals of this book
- Index