Show Summary Details
Page of

Caring for people with dementia towards and at the end of life 

Caring for people with dementia towards and at the end of life
Caring for people with dementia towards and at the end of life

Louise Robinson

Page of

PRINTED FROM OXFORD MEDICINE ONLINE ( © Oxford University Press, 2021. All Rights Reserved. Under the terms of the licence agreement, an individual user may print out a PDF of a single chapter of a title in Oxford Medicine Online for personal use (for details see Privacy Policy and Legal Notice).

date: 22 January 2021

Research evidence confirms that people dying with dementia receive suboptimal care compared to those with terminal cancer. Good quality end-of-life care in dementia can be achieved. It requires good communication with open and sensitive discussions about future preferences for care; advice about power of attorney, and other practical issues including support services and technology; continuity of care through a named lead GP/care-home nurse; detailed observation for signs of distress once communication has been lost; and referral to specialist services such as old-age psychiatry for behavioural problems, and palliative care for end-of-life symptom management. Most importantly, the uncertainty of the dying trajectory needs to be clearly understood by health professionals and clearly explained to family carers to help them understand the slow and often prolonged pathway to dying.

Access to the complete content on Oxford Medicine Online requires a subscription or purchase. Public users are able to search the site and view the abstracts for each book and chapter without a subscription.

Please subscribe or login to access full text content.

If you have purchased a print title that contains an access token, please see the token for information about how to register your code.

For questions on access or troubleshooting, please check our FAQs, and if you can't find the answer there, please contact us.