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The impact of cognitive and behavioural change on quality of life of caregivers and patients with ALS and other neurological conditions 

The impact of cognitive and behavioural change on quality of life of caregivers and patients with ALS and other neurological conditions
Chapter:
The impact of cognitive and behavioural change on quality of life of caregivers and patients with ALS and other neurological conditions
Author(s):

Tom Burke

, Miriam Galvin

, Sinead Maguire

, Niall Pender

, and Orla Hardiman

DOI:
10.1093/med/9780198757726.003.0009
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date: 22 February 2020

Cognitive and behavioural changes are relatively common in patients with ALS, but often receive less emphasis than the loss of physical strength and function. There is extensive literature on the impact of cognitive and behavioural changes on Quality of Life (QoL) in caregivers and the patients themselves in a variety of other neurological conditions, the implications of which are directly applicable in many respects to ALS. Based on this information, a number of intervention strategies may be employed, including psycho-educational and psychotherapeutic interventions, group-based support services, cognitive stimulation/training, and multidisciplinary interventions, among others. Specific strategies can be used to manage cognitive and behavioural dysfunction in patients, and may serve to improve the QoL of patients and caregivers, while lessening caregiver burden.

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