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Assessment and monitoring outcomes in axial spondyloarthritis 

Assessment and monitoring outcomes in axial spondyloarthritis
Assessment and monitoring outcomes in axial spondyloarthritis

Stefan Siebert

, Sengupta Raj

, and Alexander Tsoukas

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date: 27 September 2020

Axial spondyloarthritis (axSpA) is a heterogeneous condition with multiple effects and a variable course. Monitoring outcomes is required to optimize treatment and care. There are a significant number of outcomes that could potentially be measured in patients with axSpA. Performing these in routine clinical practice has resource and logistic implications, so clinicians and teams looking after patients with axSpA need to decide which aspects they will monitor locally. Most national and international guidelines for the use of biologics require regular monitoring of disease activity. In this chapter, we outline suggested core data sets and review some of the key validated outcomes for axSpA. These include a range of patient-reported and clinician-assessed measures covering disease activity, symptoms (such as pain, stiffness, and fatigue), function, mobility, work disability, and quality of life. We also review the roles of acute phase blood tests and imaging in monitoring axSpA.

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