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A young person’s experience of chronic disease 

A young person’s experience of chronic disease
A young person’s experience of chronic disease


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date: 25 February 2021

This chapter is an anonymous account of one young person’s experience of receiving lifelong treatment for chronic disease. A trip to the hospital or to see the doctor for a single issue doesn’t require an advanced level of trust. A chronic condition requires the patient to develop a bond of trust with their care provider to make decisions that will maintain or, ideally, improve the condition. Vice versa, the care provider, be it doctor or nurse, needs to be able trust the patient to take on board their advice and be sure any medical plan will be followed, whether it is a set of exercises or a rigid treatment regime. This is a process that occurs over time and, with a chronic condition, time is something that can be afforded.

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