- Preface to the Second Edition
- Symbols and abbreviations
- Chapter 1 Paediatric palliative medicine: philosophy and practice
- Chapter 2 Models of paediatric palliative care
- Chapter 3 Ethics in palliative care
- Chapter 4 Pain: introduction
- Chapter 5 Pain evaluation
- Chapter 6 Pain: step 3, major opioids
- Chapter 7 Adjuvants
- Chapter 8 Nausea and vomiting
- Chapter 9 Gastrointestinal symptoms
- Chapter 10 Mouth care, feeding, and hydration
- Chapter 11 Dyspnoea
- Chapter 12 Neurological symptoms
- Chapter 13 Psychological symptoms
- Chapter 14 Skin symptoms
- Chapter 15 Palliative care emergencies
- Chapter 16 Malignant diseases
- Chapter 17 Specific non-malignant diseases
- Chapter 18 Palliative care in intensive care environments
- Chapter 19 Practicalities around time of death
- Chapter 20 Religion and ritual
- Chapter 21 Bereavement
- Chapter 22 Communication skills
- Chapter 23 Communication amongst professionals
- Chapter 24 Coping skills
- Chapter 25 Education and training
- Chapter 26 Formulary
- Index
(p. 159) Specific non-malignant diseases
- Chapter:
- (p. 159) Specific non-malignant diseases
- Author(s):
Richard D.W. Hain
and Satbir Singh Jassal
- DOI:
- 10.1093/med/9780198745457.003.0017
The number of life-limiting conditions in paediatrics is vast, and paediatric palliative medicine is generally based equally on both malignant and non-malignant conditions. There are several medical conditions that are common enough for it to be helpful to know about them in more detail. As all the conditions, by definition, have no cure, it is best to tackle each symptom with which the child presents individually, never forgetting that medical intervention is not the only modality open to us. Common conditions, such as Duchenne muscular dystrophy, mucopolysaccharidosis type 1, mucopolysaccharidosis type 3, Batten’s disease, spinal muscular atrophy, and trisomy 18, are covered in this chapter. Details of clinical features and prognosis are described for each.
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- Preface to the Second Edition
- Symbols and abbreviations
- Chapter 1 Paediatric palliative medicine: philosophy and practice
- Chapter 2 Models of paediatric palliative care
- Chapter 3 Ethics in palliative care
- Chapter 4 Pain: introduction
- Chapter 5 Pain evaluation
- Chapter 6 Pain: step 3, major opioids
- Chapter 7 Adjuvants
- Chapter 8 Nausea and vomiting
- Chapter 9 Gastrointestinal symptoms
- Chapter 10 Mouth care, feeding, and hydration
- Chapter 11 Dyspnoea
- Chapter 12 Neurological symptoms
- Chapter 13 Psychological symptoms
- Chapter 14 Skin symptoms
- Chapter 15 Palliative care emergencies
- Chapter 16 Malignant diseases
- Chapter 17 Specific non-malignant diseases
- Chapter 18 Palliative care in intensive care environments
- Chapter 19 Practicalities around time of death
- Chapter 20 Religion and ritual
- Chapter 21 Bereavement
- Chapter 22 Communication skills
- Chapter 23 Communication amongst professionals
- Chapter 24 Coping skills
- Chapter 25 Education and training
- Chapter 26 Formulary
- Index