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Patient support and advocacy 

Patient support and advocacy
Chapter:
Patient support and advocacy
Author(s):

Seoirse Smith

and Laurie M. Savage

DOI:
10.1093/med/9780198734444.003.0027
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date: 01 October 2020

Patient advocacy groups grew out of a need to provide support to and education for patients and to fuel research to better understand diseases and their diagnosis, and treatment options for patients. These organizations have become integral partners with the medical community in developing healthcare policy, patient education, patient support, and scientific research. The Ankylosing Spondylitis International Federation (ASIF) of patient advocacy and support groups and the Spondylitis Association of America (SAA) are two of the leading patient advocacy organizations for millions of people affected by axial spondyloarthritis, increasing awareness of the disease, disseminating knowledge, sponsoring research, and influencing public policy.

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