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Pediatric Goals of Care: Leading through Uncertainty 

Pediatric Goals of Care: Leading through Uncertainty
Chapter:
Pediatric Goals of Care: Leading through Uncertainty
Author(s):

Christina McDaniel

, and Jordan M. Desai

DOI:
10.1093/med/9780190862374.003.0060
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date: 18 October 2019

Leading patients and families through the uncertainty of a life-limiting illness is challenging at best. The dynamics that impact these conversations require effective communication, empathy, and active listening. There are many influences on the way a patient and family make decisions about their healthcare. It is crucial to understand the values of the patient and family in order to enable decision-making that centers on what they consider important. Throughout an illness trajectory, clinicians support decision-making through episodes of stability and of instability. The clinician’s recognition of his or her own need for support during these times is essential to ensuring sustainability, as well as to ensure effectiveness in their guidance of the patient and family.

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