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Contents
- 1 Subject Perspectives
: The Missing Element in Research Ethics - 2 Personal Knowledge and Study Participation
- 3 The Everyday Ethics of Human Research
- 4 The Hidden World of Subjects
: Rule-Breaking in Clinical Trials - 5 Participants as Partners in Genetic Research
- 6 Terminally Ill Patients and the “Right to Try” Experimental Drugs
- 7 Embedded Ethics in Developing-Country Research
- 8 Research Subjects as Literary Subjects
- 9 How to Hear Subjects
