- Preface
- Acknowledgments
- Contributors
- Part One The Palliative Advanced Practice Registered Nurse
- Chapter 1 History of the Advanced Practice Role in Palliative Nursing
- Chapter 2 Fundamental Skills and Education for the Palliative Advanced Practice Registered Nurse
- Chapter 3 Credentialing, Certification, and Scope of Practice Issues for the Palliative Advanced Practice Registered Nurse
- Chapter 4 Reimbursement for the Palliative Advanced Practice Registered Nurse
- Chapter 5 Data Utilization for the Palliative Advanced Practice Registered Nurse
- Part Two The Palliative Advanced Practice Registered Nurse across Healthcare Settings
- Part Three Pain and Symptom Management for the Palliative Advanced Practice Registered Nurse
- Part Four Communication
- Chapter 38 Introducing Palliative Care
- Chapter 39 Advance Care Planning
- Chapter 40 Family Meetings
- Chapter 41 Communication at the Time of Death
- Chapter 42 Navigating Ethical Discussions in Palliative Care
- Chapter 43 Culturally Respectful Palliative Care
- Part Five Spiritual Care
- Chapter 44 The Role of the Advanced Practice Registered Nurse in Spiritual Care
- Chapter 45 Communication Principles in Spiritual Care
- Chapter 46 Life Review
- Chapter 47 Interdisciplinary Team Collaboration and the Provision of Spiritual Care
- Part Six Special Situations: Withdrawal of Technology
- Chapter 48 Withdrawal of Cardiology Technology
- Chapter 49 Withdrawal of Respiratory Technology
- Chapter 50 Discontinuation of Life-Sustaining Therapies
- Chapter 51 Palliative Sedation
- Part Seven Special Populations
- Chapter 52 Recurrent Disease and Long-Term Survivorship
- Chapter 53 Cognitive Impairment
- Chapter 54 Patients with Substance Use Disorder
- Chapter 55 Economically Disadvantaged Urban Dwellers
- Chapter 56 Veterans
- Part Eight The Pediatric Palliative Advanced Practice Registered Nurse
- Chapter 57 The Role of the Pediatric Palliative Advanced Practice Registered Nurse
- Chapter 58 Pediatric Palliative Care Across the Continuum
- Chapter 59 Preparing for the Unexpected
- Chapter 60 Pediatric Oncology
- Chapter 61 Pediatric Palliative Care in the Community
- Chapter 62 Communication in Pediatrics
- Index
(p. 587) Pediatric Palliative Care in the Community
- Chapter:
- (p. 587) Pediatric Palliative Care in the Community
- Author(s):
Joan “Jody” Chrastek
- DOI:
- 10.1093/med/9780190204747.003.0061
This chapter provides a brief overview of pediatric palliative care in the community setting. Many children express that they want to die at home. However, it can be frightening for families to take a medically fragile loved one home. With education, support, and the 24-hour availability of professionals, families soon find that they are the experts on their child. This expertise is the natural role and privilege of a parent or parent surrogate, whatever the health status of the child.
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- Preface
- Acknowledgments
- Contributors
- Part One The Palliative Advanced Practice Registered Nurse
- Chapter 1 History of the Advanced Practice Role in Palliative Nursing
- Chapter 2 Fundamental Skills and Education for the Palliative Advanced Practice Registered Nurse
- Chapter 3 Credentialing, Certification, and Scope of Practice Issues for the Palliative Advanced Practice Registered Nurse
- Chapter 4 Reimbursement for the Palliative Advanced Practice Registered Nurse
- Chapter 5 Data Utilization for the Palliative Advanced Practice Registered Nurse
- Part Two The Palliative Advanced Practice Registered Nurse across Healthcare Settings
- Part Three Pain and Symptom Management for the Palliative Advanced Practice Registered Nurse
- Part Four Communication
- Chapter 38 Introducing Palliative Care
- Chapter 39 Advance Care Planning
- Chapter 40 Family Meetings
- Chapter 41 Communication at the Time of Death
- Chapter 42 Navigating Ethical Discussions in Palliative Care
- Chapter 43 Culturally Respectful Palliative Care
- Part Five Spiritual Care
- Chapter 44 The Role of the Advanced Practice Registered Nurse in Spiritual Care
- Chapter 45 Communication Principles in Spiritual Care
- Chapter 46 Life Review
- Chapter 47 Interdisciplinary Team Collaboration and the Provision of Spiritual Care
- Part Six Special Situations: Withdrawal of Technology
- Chapter 48 Withdrawal of Cardiology Technology
- Chapter 49 Withdrawal of Respiratory Technology
- Chapter 50 Discontinuation of Life-Sustaining Therapies
- Chapter 51 Palliative Sedation
- Part Seven Special Populations
- Chapter 52 Recurrent Disease and Long-Term Survivorship
- Chapter 53 Cognitive Impairment
- Chapter 54 Patients with Substance Use Disorder
- Chapter 55 Economically Disadvantaged Urban Dwellers
- Chapter 56 Veterans
- Part Eight The Pediatric Palliative Advanced Practice Registered Nurse
- Chapter 57 The Role of the Pediatric Palliative Advanced Practice Registered Nurse
- Chapter 58 Pediatric Palliative Care Across the Continuum
- Chapter 59 Preparing for the Unexpected
- Chapter 60 Pediatric Oncology
- Chapter 61 Pediatric Palliative Care in the Community
- Chapter 62 Communication in Pediatrics
- Index