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Neonatal and Pediatrics 

Neonatal and Pediatrics
Chapter:
Neonatal and Pediatrics
Author(s):

Barbara L. Jones

and Kendra D. Koch

DOI:
10.1093/med/9780190201708.003.0027
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date: 27 January 2020

Pediatric palliative care is a patient- and family- centered practice that uses seeks to optimize quality of life during a child’s illness while extending emotional care and social support to the patient and his or her family. It differs from adult palliative care in several ways. Tailoring communication toward pediatric populations involves understanding the developmental needs of children and adolescents, who should be brought into conversations that affect their care. It also requires a refinement of communication practices. Parents of children with life-threatening illness are asked to make treatment decisions and coordinate care based on information from pediatric palliative care teams. Unclear or ambiguous communication may hinder parents’ ability to make those decisions. Strategies and tools specific to pediatric palliative care communication that are informed by knowledge of developmental needs, best practices, and humility should be used by professionals providing care to children with life-threatening conditions and their families.

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