- Contributors
- 1 Whose Decision Is This?
- 2 Why Is Everyone Giving up on Our Son?
- 3 Will My Baby Learn to Walk?
- 4 We Are So Glad She Saw the Beach
- 5 Can You Go Change the Family’s Mind?
- 6 In the Eye of the Beholder
- 7 You Can’t Tell Him That!
- 8 You Can’t Stop the Machines!
- 9 I Won’t Let You!
- 10 Time to Stop
- 11 Is She Dying?
- 12 Stuck on Life Support
- 13 How Do We Go Back to Work Now?
- 14 Always Putting My Needs Last
- 15 My Stomach Hurts
- 16 No Access and Still in Pain
- 17 My Skin Feels Like It Is on Fire
- 18 The Withdrawn Child
- 19 She Won’t Stop Vomiting
- 20 Can’t Catch My Breath
- 21 Why Isn’t She Looking at Me?
- 22 The Lack of Movement
- 23 Teenage “Bleh”
- 24 A Sad Side Effect of Cancer
- 25 My Patient Is Twitching; Could It Be Itching?
- 26 Is My Baby Feeling Hungry?
- 27 Saying Hello and Goodbye
- 28 I Feel My Baby Moving; How Is She Incompatible with Life?
- 29 A Moment Becomes a Memory
- 30 Tiny Fingers, Tiny Toes
- 31 A Case of Refusing to Agree
- 32 I Just Want to Feel Normal!
- 33 I Need a Refill
- 34 They’re Taking Away Her Health Insurance!
- 35 The Unexpected Question
- 36 A Winding Path
- 37 Why Is She So Distressed?
- 38 Maximizing the Time Left
- Index
(p. 45) You Can’t Stop the Machines!
- Chapter:
- (p. 45) You Can’t Stop the Machines!
- Author(s):
Elissa G. Miller
- DOI:
- 10.1093/med/9780190051853.003.0008
It is not uncommon for families to request that providers “do everything” to help their dying child. However, there is no way a clinical team can do “everything”—families and care teams make choices and families must weigh the trade-offs inherent in those choices. By defining what “do everything” means to an individual patient or family and establishing goals of care, many families choose to follow the recommendations of a care team. However, some families continue to insist that “everything” must be done for their child. This chapter discusses working with patients and families who request “everything” and addresses some difficult scenarios in which families persist in their request, especially at end of life.
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- Contributors
- 1 Whose Decision Is This?
- 2 Why Is Everyone Giving up on Our Son?
- 3 Will My Baby Learn to Walk?
- 4 We Are So Glad She Saw the Beach
- 5 Can You Go Change the Family’s Mind?
- 6 In the Eye of the Beholder
- 7 You Can’t Tell Him That!
- 8 You Can’t Stop the Machines!
- 9 I Won’t Let You!
- 10 Time to Stop
- 11 Is She Dying?
- 12 Stuck on Life Support
- 13 How Do We Go Back to Work Now?
- 14 Always Putting My Needs Last
- 15 My Stomach Hurts
- 16 No Access and Still in Pain
- 17 My Skin Feels Like It Is on Fire
- 18 The Withdrawn Child
- 19 She Won’t Stop Vomiting
- 20 Can’t Catch My Breath
- 21 Why Isn’t She Looking at Me?
- 22 The Lack of Movement
- 23 Teenage “Bleh”
- 24 A Sad Side Effect of Cancer
- 25 My Patient Is Twitching; Could It Be Itching?
- 26 Is My Baby Feeling Hungry?
- 27 Saying Hello and Goodbye
- 28 I Feel My Baby Moving; How Is She Incompatible with Life?
- 29 A Moment Becomes a Memory
- 30 Tiny Fingers, Tiny Toes
- 31 A Case of Refusing to Agree
- 32 I Just Want to Feel Normal!
- 33 I Need a Refill
- 34 They’re Taking Away Her Health Insurance!
- 35 The Unexpected Question
- 36 A Winding Path
- 37 Why Is She So Distressed?
- 38 Maximizing the Time Left
- Index