- Contributors
- 1 Whose Decision Is This?
- 2 Why Is Everyone Giving up on Our Son?
- 3 Will My Baby Learn to Walk?
- 4 We Are So Glad She Saw the Beach
- 5 Can You Go Change the Family’s Mind?
- 6 In the Eye of the Beholder
- 7 You Can’t Tell Him That!
- 8 You Can’t Stop the Machines!
- 9 I Won’t Let You!
- 10 Time to Stop
- 11 Is She Dying?
- 12 Stuck on Life Support
- 13 How Do We Go Back to Work Now?
- 14 Always Putting My Needs Last
- 15 My Stomach Hurts
- 16 No Access and Still in Pain
- 17 My Skin Feels Like It Is on Fire
- 18 The Withdrawn Child
- 19 She Won’t Stop Vomiting
- 20 Can’t Catch My Breath
- 21 Why Isn’t She Looking at Me?
- 22 The Lack of Movement
- 23 Teenage “Bleh”
- 24 A Sad Side Effect of Cancer
- 25 My Patient Is Twitching; Could It Be Itching?
- 26 Is My Baby Feeling Hungry?
- 27 Saying Hello and Goodbye
- 28 I Feel My Baby Moving; How Is She Incompatible with Life?
- 29 A Moment Becomes a Memory
- 30 Tiny Fingers, Tiny Toes
- 31 A Case of Refusing to Agree
- 32 I Just Want to Feel Normal!
- 33 I Need a Refill
- 34 They’re Taking Away Her Health Insurance!
- 35 The Unexpected Question
- 36 A Winding Path
- 37 Why Is She So Distressed?
- 38 Maximizing the Time Left
- Index
(p. 275) Why Is She So Distressed?
- Chapter:
- (p. 275) Why Is She So Distressed?
- Author(s):
Daniel Waechter Webb
, and Megan J. Thorvilson
- DOI:
- 10.1093/med/9780190051853.003.0037
Illness often raises many questions related to humanity and life meaning both for children and their families, and many lean on spirituality to sustain them in difficult times. When one’s ability to experience and integrate meaning in life becomes disrupted, patients may experience spiritual distress, which can present in physical, psychological, and social ways. The majority of pediatricians acknowledge a positive role for spirituality in healing, in strengthening the therapeutic relationship, and in providing support for patients/families, yet clinicians often feel ill-equipped to address spirituality with families. However, most parents would prefer to be open about their spiritual beliefs and practices with their medical team. In addition to the clinician, chaplains, child life specialists, social workers, and psychologists can support the evolving spiritual needs of children as they grow and develop.
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- Contributors
- 1 Whose Decision Is This?
- 2 Why Is Everyone Giving up on Our Son?
- 3 Will My Baby Learn to Walk?
- 4 We Are So Glad She Saw the Beach
- 5 Can You Go Change the Family’s Mind?
- 6 In the Eye of the Beholder
- 7 You Can’t Tell Him That!
- 8 You Can’t Stop the Machines!
- 9 I Won’t Let You!
- 10 Time to Stop
- 11 Is She Dying?
- 12 Stuck on Life Support
- 13 How Do We Go Back to Work Now?
- 14 Always Putting My Needs Last
- 15 My Stomach Hurts
- 16 No Access and Still in Pain
- 17 My Skin Feels Like It Is on Fire
- 18 The Withdrawn Child
- 19 She Won’t Stop Vomiting
- 20 Can’t Catch My Breath
- 21 Why Isn’t She Looking at Me?
- 22 The Lack of Movement
- 23 Teenage “Bleh”
- 24 A Sad Side Effect of Cancer
- 25 My Patient Is Twitching; Could It Be Itching?
- 26 Is My Baby Feeling Hungry?
- 27 Saying Hello and Goodbye
- 28 I Feel My Baby Moving; How Is She Incompatible with Life?
- 29 A Moment Becomes a Memory
- 30 Tiny Fingers, Tiny Toes
- 31 A Case of Refusing to Agree
- 32 I Just Want to Feel Normal!
- 33 I Need a Refill
- 34 They’re Taking Away Her Health Insurance!
- 35 The Unexpected Question
- 36 A Winding Path
- 37 Why Is She So Distressed?
- 38 Maximizing the Time Left
- Index