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Stuck on Life Support 

Stuck on Life Support
Stuck on Life Support

Elissa G. Miller

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date: 17 April 2021

Children with medical complexity are living longer with greater technology dependence. However, with each new technology, families face a new decision with new benefits and burdens. Parents in online communities share details of their child’s medical care, which sometimes leads them to inquire about medical interventions they may have learned about from another parent whose child has the same disease. Palliative care teams often help families make decisions with regard to new medical technology. This chapter discusses common decisions families face concerning initiating new medical technology and what families want to hear from their providers before making these difficult decisions.

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