Page of

The Cancer Support Community: A Person-Centered Model of Evidence-Based Cancer Caregiver Support 

The Cancer Support Community: A Person-Centered Model of Evidence-Based Cancer Caregiver Support
Chapter:
The Cancer Support Community: A Person-Centered Model of Evidence-Based Cancer Caregiver Support
Source:
Cancer Caregivers
Author(s):

Joanne S. Buzaglo

, Alexandra K. Zaleta

, Margaret L. Longacre

, and Mitch Golant

DOI:
10.1093/med/9780190868567.003.0015

The demands of caregiving are associated with physical, emotional, and practical consequences for cancer patients and caregivers. Guided by a person-centered model of evidence-based support, the Cancer Support Community, an international nonprofit organization, provides patient and caregiver support, education, and programming. This chapter highlights two research initiatives: the Cancer Experience Registry® online research program and CancerSupportSource–Caregiver®, a web-based distress-screening program designed to identify caregiver needs and refer caregivers to tailored support services. In addition, the chapter summarizes the educational and support programs available to caregivers at no cost through the Cancer Support Community. Finally, the chapter includes recommendations for future implementation and dissemination research on the effectiveness of integrated caregiver support with respect to quality and cost-related outcomes.

Sign In

Copyright © 2021. All rights reserved.